Autism…The Invisible Disability.  Tackling fragmented care and health inequity for children on the spectrum

Last modified by Paula Robeson on 2020/03/10 18:04

A common barrier to successful treatment and support of children and families with complex needs is a persistent lack of coordination across child service sectors. Children with autism spectrum disorder (ASD) have needs that span systems, experience disproportionally high deficits in service delivery, and are more likely to have dual diagnoses with persistent behavioural difficulties. Caregivers contend with significantly higher levels of stress/burnout, feelings of isolation, frustration and other physical and mental health issues.

This session will highlight novel practices in pediatric care coordination that we know are working to help support children and families. The emphasis is on addressing interrelated medical, social, behavioral, educational, and financial needs to achieve optimal health and wellness outcomes (Antonelli et al., 2016).

A tested model of care coordination will be discussed along with case examples to illustrate how these practices are implemented in everyday care. Measures to assess impacts on parent stress, service utilization, child outcomes, and acute care usage will be shared.


  • Gain a better understanding of the unique challenges faced by families caring for a child with autism spectrum disorder (ASD) and/or ADHD.  
  • Learn how a unique QI project at Alberta Children's Hospital is improving the coordination of care for children with neurodevelopmental disorders and medical complexities across health, education and social sectors.  
  • Learn about a model of care coordination and how it is now being scaled and spread to other complex needs populations.

Primary audience(s) (include all that apply)

  • Front-line service providers
  • Senior leaders 
  • Policy Makers
  • Families

Secondary audience(s) (include all that apply)

  • Researchers
  • Community service agencies
  • Schools / educators
  • Social services agencies

Click here to register for this webinar scheduled to take place on April 1, 2020 from 1100-1200 Eastern

Nadine Gall 

Meridith Yohemas

Genevieve Currie

Created by Paula Robeson on 2020/03/10 17:59