Data Collection in the Ambulatory and Community Based Rehabilitation Services Sector

Last modified by Doug Maynard on 2017/03/22 20:50

2017 02 01 PRRS Webinar - FINAL.pdfHealthcare and other organizations that provide services to children and families are increasingly under pressure to demonstrate the effectiveness of services, to justify funding, and in general, to become more data driven.  While hospitals and other centres dealing with health information are investing more into data collection and analysis there are still many gaps in this system.

Join our panel from CAPHC's Canadian Paediatric Decision Support Network, and the Canadian Network for Child and Youth Rehabilitation, as they explore the challenges of collecting relevant data and performance indicators in the ambulatory and community based rehabilitation services sector, and how some of these challenges are being overcome.  Our panel will introduce the Paediatric Rehabilitation Reporting System, launched in September 2015, as a case study of how some of the unique challenges to the paediatric rehabilitation sector were overcome, and what opportunities lay in the future to support a data driven approach to improving rehabilitation service delivery.


Click here to download the presentation slides. 


image.jpegSiam Javeid BSc (Honors), MHI
Paediatric Rehabilitation Reporting System (PRRS) Project Manager, CAPHC CPDSN
Senior Health Information Analyst, CAPHC CPDSN
Siam Javeid is the Senior Health Information Analyst and Program Manager for the Paediatric Rehabilitation Reporting System (PRRS) at the Canadian Association of Paediatric Health Centres. She has over 8 years of project management experience and over 6 years working in the health care sector. In the last two and a half years, Siam has led and worked close with clinical leaders and CIHI to take the PRRS project from inception to implementation and now PRRS is officially live to capture and share data from paediatric rehabilitation centres across the country. The PRRS program will allow a national network of organizations that provide rehabilitation services to children to benchmark the outcomes of their services with similar organizations across Canada. The program will support planning and decision making, help inform health service delivery and ultimately improve the services provided by rehabilitation centres from coast to coast. The experience of leading this project from its inception phase in 2014 to its launch phase has increased Siam’s eagerness and passion in leading organizational and health system change. She is eager to further apply new methodologies that will enhance health systems and bridge the knowledge and cultural gaps in the clinical and healthcare delivery sectors.

As CAPHC CPDSN’s Decision Support Senior Health Information Analyst, Siam also leads various national decision support, quality and operational performance activities. Her primary areas of focus has been on supporting information needs and advancing paediatric empirical decision support in Canada with the goal of improving health care and the health of Canadian children, youth and their families. Siam holds a Bachelor’s degree in Health Sciences from the University of Ottawa and currently completing her Master’s degree in Health Informatics in the executive stream at the University of Toronto.

Adrienne Zaram.jpgMs. Adrienne Zarem
Family Leader, Holland Bloorview Rehabilitation Hospital

Adrienne Zarem is a Family Leader at Holland Bloorview Rehabilitation Hospital in Toronto, Ontario. She has been a member on the steering committee of the Paediatric Rehabilitation Reporting System project for just over two years, and in her role as a Family Leader she brings client and family perspectives to the table. 

Ms. Zarem is  the mother of two young girls, the youngest of which was diagnosed with autism spectrum disorder at two years of age. She currently works on a number of projects at Holland Bloorview, including serving as the Co-Chair of the Family Leader Accreditation Group as they prepare for their 2017 Hospital Accreditation. 

Dorothy Harvey

Dorothy is the current co-chair of the PRRS Steering Committee and a member of the CN-CYR Leadership Council. Dorothy is a physiotherapist and the manager of Rehabilitation Services at the Niagara Children’s Centre. She represents the Ontario Association of Children’s Rehabilitation Services (OACRS) at the PRRS table. She has been involved with the project since its inception as the National Minimum Dataset. Dorothy has as a strong commitment to the use of data to inform practice and participates in a number of committee’s at the provincial level that are furthering this work. She is the current chair of the OACRS Clinical Best Practices Working Group and a member of the OACRS Data Working Group. Dorothy also brings a personal perspective to the table as the mother of 2 children with special needs.