Developing Patient-Reported Measures of Medical Technology and Feeding for Children in Complex Care

Last modified by Andrew Tomayer on 2019/03/19 21:16

Caregivers of children with medical complexity wish for their experiences with medical technology and feeding their child be addressed and evaluated. We are currently developing patient-reported tools to measure these things for use in care coordination and clinical practice. This webinar will be focused on our progress thus far while eliciting feedback from the community about the next steps for these measures.

Please register for Developing Patient-Reported Measures of Medical Technology and Feeding for Children in Complex Care on Mar 20, 2019 11:00 AM EST at:

Please register for Medical Assistance and Dying, and Mature Minors: Where Are We Now? on Mar 27, 2019 11:00 AM EST at:

Nora_Fayed_cropped.jpgDr. Nora Fayed

Nora Fayed is an Assistant Professor of Occupational Therapy at Queen’s University. Her program of research, is focused on the measurement and prediction of child-important outcomes, such as child functioning, quality of life, and well-being. Currently, she co-leads the Patient-Engagement Evaluation of “Complex Care for Kids Ontario” with Dr. Eyal Cohen. As Co-Chair of the Canadian Special Interest Group at the International Society of Quality of Life Research, she is concerned with methodological advancements and other activities related to patient-reported outcomes measurement in Canada and throughout the world.

major-cook_nathalie_0.jpg Nathalie Major MD, FRCPC, Medical Director, Complex Medical Care Service, Assistant Professor of Pediatrics, University of Ottawa

Dr. Major is an Assistant Professor of Pediatrics at the University of Ottawa.  She completed her pediatric training at Queen’s University and the Ottawa University in 1998. She extended her training with a one year Infectious Diseases Fellowship at the Ottawa University in 1999. She has been on the clinical staff of the Children’s Hospital of Eastern Ontario (CHEO) since 1998.
Dr. Major is the Medical Director for the Complex Medical Care Program (CMC) at CHEO.  She is also the Co-Chair for the Community of Practice for Complex Care with the Canadian Association of Pediatric Health Centres. Dr. Major works on national and provincial initiatives advising on integrated care model. Her research interest is on models of care coordination for children with complex chronic conditions.