Health outcomes after premature birth: what matters to parents and families?

Last modified by Jose Gauthier on 2020/10/23 15:38

Numerous short-, medium-, and long-term health outcomes for survivors of neonatal intensive care units (NICUs) have been identified by clinicians and researchers. However, parents/families perceptions of which outcomes are most important can be quite different. Clinicians and researchers have decided how to classify children according to levels of disability and have chosen, based on their values, outcomes they believe are important. When families are asked about what is important to them, they often do not agree those identified by clinicians or researchers. In fact, parents/families are often concerned about many outcomes that we do not measure. These differences and parental/family values and perceptions have implications for clinical care, parent partnership in that care, and research.

During this webinar, you will learn of 

  • outcomes of importance to parents/families
  • related ethical, clinical and research implications

The primary audience for this webinar includes:

  • Front-line service providers, 
  • Middle managers, 
  • Senior leaders, 
  • Policy makers, 
  • Patient/Family partners/advocates, 
  • Researchers

Dr. Annie Janiver, MD, PhD is a neonatologist (pediatrician who takes care of sick babies) and a researcher. She is also the mother of 3 children, 2 of which were very sick. Violette was born at 24 weeks. 

Dr Annie Janvier.jpg

Created by Logan Green on 2020/08/18 19:34