Pediatric Pain, Patient & Community Partnership, and Research: Five Studies to Keep You in the Know

Last modified by Jose Gauthier on 2021/11/23 15:16

As part of our SPARK: Pain Theme Month, this webinar will highlight the following Chronic Pain Network (CPN)-funded pediatric pain research projects:

1. Trauma and Pain: An Intergenerational Problem with Dr. Sabine Soltani

Children with chronic pain and their parents experience trauma symptoms at much higher rates than non-pain populations and trauma is linked to worse pain and functioning. Conceptual models of mutual maintenance posit that neurobiological, cognitive-behavioral, and interpersonal factors drive this relationship, but this has not yet been empirically shown in prospective research. Dr. Noel will present new prospective data from a cohort of treatment-seeking youth with chronic pain and their parents (N=150) integrating methods in brain-imaging, eye-tracking, ecological momentary assessment, and activity monitoring demonstrating the roles of brain activation, cognitive biases, sleep disturbances and parent factors in the co-occurrence and maintenance of trauma (ACEs, PTSD) and pediatric chronic pain. Data demonstrating epigenetic and behavioural (parenting responses, sleep disturbances) mechanisms underlying the intergenerational transmission of risk for pediatric chronic pain across generations will be presented. Overlapping epigenetic factors yielded from combining the animal and human models will be identified. 

2. The JIA Option Map: A Web-based Patient Decision Aid for Pain Management in Juvenile Idiopathic Arthritis with Dr. Karine Toupin-April

Young people with juvenile idiopathic arthritis (JIA) often experience pain but decision-making for pain management is not optimal. Our team has developed the JIA Option Map, a web-based patient decision aid that provides personalized evidence-based information on pain management. This presentation will describe the usability and acceptability of the JIA Option Map from the perspectives of young people with JIA and parents/caregivers.  

3. Complex Regional Pain Syndrome in Canadian Children and Youth with Dr. Krista Baerg

Complex Regional Pain Syndrome (CRPS) is a chronic severe pain condition. Little is known about epidemiology in children. This study describes the minimum incidence of pediatric CRPS, clinical features, and treatments recommended by pediatricians and pain clinics in Canada. During the 2-year study period, Canadian Paediatric Surveillance Program (CPSP) participants and Canadian pediatric pain clinics reported any patient aged 2–18 years with a new diagnosis of CRPS, meeting the Budapest criteria. 

4. iCanCope: A Digital Pain Self-management Platform for Youth with Chronic Pain with Dr. Chitra Lalloo

iCanCope with Pain is a smartphone-based pain self-management platform for youth with chronic pain. It was created through a user-centred design approach that involved youth with pain and healthcare providers at every stage. The core features include symptom tracking, SMART goal setting, toolbox of pain education and coping strategies, and peer community. Condition specific iterations of iCanCope have been developed for youth with chronic pain, arthritis, sickle cell disease, neurofibromatosis, and post-operative pain. This presentation will focus on preliminary data from a CPN-funded randomized controlled trial of iCanCope in adolescents and youth adults with chronic pain from across Canada.  

5. Aboriginal Children's Hurt and Healing Initiative National: Gathering and Sharing Knowledge to Improve Aboriginal Children's Pain Assessment and Management with Dr. Margot Latimer & Family Partner, Angela Naveau

Expansion of the Aboriginal Children’s Hurt & Healing initiative to encompass six additional communities, including four more First Nations (Alberta, BC, Ontario and Quebec), one Inuit (Labrador) and one Metis (Manitoba) community. The Aboriginal Children’s Hurt & Healing (ACHH) Initiative was created out of a need to better understand the issue of chronic pain in Aboriginal pediatric populations. Aboriginal children experience higher rates of painful conditions including, but not limited to, dental pain, ear pain and headaches. However, pain management and treatment remains inadequate. ACHH Initiative has engaged four Atlantic Canadian First Nations communities (3 Mi’kmaq, 1 Maliseet) to begin to better understand the prevalence, experience and conceptualization of pain.

Content presentations will be followed by a live round-table Q&A with Paula Robeson and our guests.

Dr. Sabine Soltani

Dr. Sabine Soltani is a clinical psychologist and post-doctoral fellow at the University of Calgary. She completed her PhD under the mentorship of Dr. Melanie Noel at the University of Calgary, and she completed her pre-doctoral residency with the Calgary Clinical Psychology Residency program in 2020. With the support of a Louise & Alan Edwards Post-Doctoral Fellowship in Pediatric Pain, Sabine is continuing her research in the area of pediatric pain with Dr. Noel as part of the Pain Education, Advocacy, Knowledge (PEAK) lab. Sabine’s research has broadly focused on the intersection between pediatric chronic pain and mental health. Her research is aimed at developing a better understanding of cognitive, affective, and dispositional constructs that may underlie the high co-occurrence of chronic pain and internalizing mental health symptoms, such as anxiety, depression, and posttraumatic stress in youth.

Dr. Karine Toupin-April

Dr. Karine Toupin April is an Associate Professor in the School of Rehabilitation Sciences at the University of Ottawa, and is affiliated with the Children’s Hospital of Eastern Ontario (CHEO) Research Institute. Her work has included research in pediatric and adult rheumatology, with experience in conducting systematic reviews and developing patient-reported outcome measures, clinical practice guidelines, patient decision support interventions and self-management tools. She is an editor of the Cochrane Musculoskeletal Group and the chair of the OMERACT (Outcome Measures in Rheumatology) shared decision making working group. 

Dr. Krista Baerg

Dr. Baerg is a consultant pediatrician and associate professor of pediatrics at University of Saskatchewan. She is the medical lead for the Interdisciplinary Pediatric Complex Pain Clinic at Jim Pattison Children’s Hospital and is a pediatric site lead for the Chronic Pain Network.

Dr. Chitra Lalloo

Dr. Chitra Lalloo is a digital health researcher at The Hospital for Sick Children and an Assistant Professor with the Institute of Health Policy, Management, and Evaluation at the University of Toronto. She is Research Lead for both the iCanCope pain self-management mHealth platform ( and the Paediatric Project ECHO clinical education program ( Dr. Lalloo has overseen the creation and growth of the iCanCope platform for youth with chronic pain, arthritis, sickle cell disease, post-operative pain, and neurofibromatosis. She is leading multiple innovations to streamline and optimize evaluation of digital health interventions. 

Dr. Margot Latimer

Dr. Margot Latimer is a settler Canadian with Scottish ancestry and a Professor in the Faculty of Health and cross-appointed in the Department of Medicine, Dalhousie University. Her clinical experience has been in child and family tertiary care settings prior to transitioning to post -secondary education and research roles. She holds a CIHR Research Chair in Indigenous Health Nursing and a scientific appointment at IWK Health and faculty in the IWK Centre for Pediatric Pain Research. She works closely with community to mobilize Indigenous knowledge and co-leads the CIHR funded research “Aboriginal Children’s Hurt and Healing” Initiative with Mi’kmaq Health Director, Sharon Rudderham. 

Angela Naveau

Angela is Anishnaabe Kwe, Bear Clan and a member of Mattagami First Nation in Northern Ontario. Angela began her journey with the Aboriginal Health Centre in 2004 and is dedicated to the health and well-being of the Indigenous community. Angela's passion and commitment to the individuals and families of De dwa da dehs nye>s ensures their access to quality care through partnerships, advocacy and a patient first approach. Angela is dedicated to aligning Indigenous practices and ways of knowing and being to enhance the healthcare experiences and relationships for Indigenous people.

Click here to access the webinar participation certificate.

Created by Rachel Van Woezik on 2021/10/25 17:05