Supporting Families of Children with Medical Complexity During COVID-19

Last modified by Ann Watkins on 2020/05/15 16:55

As data related to #COVID19 continues to emerge, data on the impact of the virus and pandemic related to children is lacking. We don't yet know about COVID-19's impacts on children with medical complexity/fragility. We do know that, as a result of COVID19, physical distancing, the closure of school programs and ambulatory clinics, and changes to in-home or respite support during the pandemic are leaving some families exhausted, filled with uncertainty, and with many unanswered questions. Virtual care is being implemented in some areas and clinics are reaching out to families to remain connected. This session provides an opportunity to learn from the activities, resources, and supports offered through different Complex Care Programs and Services in Canada and to share what your program is doing for/with these children, their families, and your staff during the pandemic. Our speakers will try to tackle some of the following questions:

  • What are the limitations to services? 
  • What resources or supports do families need to have in place, and how can clinicians provide them? 
  • What tools and resources are you looking for or able to share?  
  • How can virtual care support patients/families and clinicians?”

Carolyn Chowne.jpg Carolyn Chowne, RN, MScN, is a Nurse Clinician who has worked at Sunny Hill Health Centre for Children for 29 years. Sunny Hill provides tertiary level services to children, from birth to age 19, for the province of BC. For the past 20 years, Carolyn has worked in the Neuromotor Program on the Feeding and Tone Management Teams. She graduated from Nursing at BCIT and subsequently obtained her Bachelor of Science in Nursing and then Masters of Science in Nursing from UBC. She has helped to develop family resources and materials including the Home Tube Feeding Manual and the Home Tube Feeding and Care video. She has presented on a wide variety of topics both locally and internationally on subjects ranging from constipation, gastrostomy tube feeding, and interdisciplinary feeding assessments to Intrathecal Baclofen and Tone Management. She loves working as a part of interdisciplinary teams and values the perspectives, knowledge and synergy of working with others towards a collective goal in supporting children and their families.

A Lim profile.jpg Audrey Lim, MD, FRCPC, MSc, is a pediatrician, Medical Lead of the Complex Care program at McMaster Children’s Hospital, and Associate Professor at McMaster University. She completed her MD and Pediatric residency at McMaster University. Dr Lim received fellowship training in Pediatric Critical Care Medicine at the Hospital for Sick Children, University of Toronto and BC Children's Hospital, University of British Columbia. She completed her Masters of Community Health Sciences from the University of Calgary. Her research interest focuses on improving the care and health of children with medical complexity technology dependency.

Reshma HeadShot.jpg Reshma Amin, MD, MSc, FRCPC is Pediatric Respirologist, Sleep Physician and Director of the Long-term Ventilation Program at SickKids. She is an Associate Professor at the University of Toronto and an Associate Scientist, Child Health and Evaluative Sciences at the SickKids Research Institute. Her clinical and research interests include the respiratory complications of children with Neuromuscular Disorders as well as children using Long-term Mechanical Ventilation at home.

Created by Paula Robeson on 2020/04/28 17:12