FASD Webinar - Screening with the FASD Toolkit

Last modified by Doug Maynard on 2013/04/29 17:08

Presenters:

Ms. Elaine Orrbine, President and CEO, the Canadian Association of Paediatric Health Centres.

Dr. Gideon Koren, Director, Motherisk Program, The Hospital For Sick Children; Professor of Paediatrics, Pharmacology, Pharmacy, Medicine and Medical Genetics, University of Toronto.

Synopsis:

Welcome to the National Screening Tool Kit for Children and Youth Identified and Potentially Affected by Fetal Alcohol Spectrum Disorder (FASD).

The development of this Tool Kit has been an engaging, sometimes challenging, and always an energetic exploration of the ‘state of the art’ on screening for FASD. It is still very much a work in progress! It has involved nearly one hundred experts and providers from Canada and the United States who, led by a Steering Committee of content experts, have worked diligently to produce this FASD Screening Tool Kit. Everyone involved cares passionately about children and youth affected by this disorder and are committed to its prevention, screening, diagnosis, early intervention and treatment.

It is extremely important that screening is never used as a substitute for full assessment and diagnosis. Screening tools are not perfect and can only predict the likelihood that a child or youth is at-risk for FASD. Misuse of screening tools has the potential to stigmatize individuals and families and runs contrary to the ethical dictate to ‘do no harm’.

Similarly, screening should not be done where there is no access to diagnostic services or in areas where capacity for diagnosis is so limited that an individual must wait a long time to be seen. In these situations screening is likely to be become a ‘de facto’ diagnosis and not serve the needs of the child or youth. Unfortunately in many parts of Canada, access to assessment and diagnosis is limited and further efforts are required to highlight and address this problem. The prevalence of FASD in Canada is estimated at 9.1 per 1,000 live births which under-scores the pressing need for increased capacity for assessment and treatment.

The Steering Committee has consistently employed criteria for evaluating and selecting screening tools and this must be an on-going process as new tools emerge and existing tools develop further. As well, the tools in this Kit require wider implementation to further test their effectiveness. It is within this context that we present this Tool Kit.

The webinar will highlight and elaborate on the following:

  • Brief Background – About The Canadian Association of Paediatric Hospitals (CAPHC);
  • CAPHC’s Focus on FASD;
  • The Screening Toolkit Development Process;
  • Screening Definition;
  • Launch of the Tool Kit;
  • The Tools;
  • Dissemination & Education Strategy; and
  • Next Steps

Resources:

Powerpoint Presentation:  Dr. Gideon Koren and Elaine Orrbine - Screening with the Toolkit, An Introduction and Overview

Acknowledgements

This webinar was made possible through a contribution agreement between the Public Health Agency of Canada (PHAC) and the Canadian Association of Paediatric Health Centres.

Created by Katie Byford-Richardson on 2011/04/05 13:13